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Governing Medical Knowledge Commons / edited by Katherine J. Strandburg, Brett M. Frischmann, Michael J. Madison.

Contributor(s): Strandburg, Katherine Jo, 1957- [editor.] | Frischmann, Brett M [editor.] | Madison, Michael J, 1961- [editor.] | Cambridge University PressSeries: Cambridge studies on governing knowledge commons | Cambridge studies on governing knowledge commons | Cambridge companions onlineDescription: 1 online resource digital, PDF file(s)ISBN: 9781316544587 (ebook)Additional physical formats: Print version:: No titleOnline resources: Cambridge companions online
Contents:
Knowledge Commons and the Road to Medical Commons Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison 1The Knowledge Commons Framework Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison 2Leviathan in the Commons: Biomedical Data and the State Jorge L. Contreras 3Centralization, Fragmentation, and Replication in the Genomic Data Commons Peter Lee 4Genomic Data Commons Barbara J. Evans 5Population Biobanks’ Governance: A Case Study of Knowledge Commons Andrea Boggio 6The Sentinel Initiative as a Knowledge Commons Ryan Abbott 7Cancer: From a Kingdom to a Commons Michael Mattioli 8The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons Maja Larson and Margaret Chon 9Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology Andrew W. Torrance 10Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community Tania Bubela, Rhiannon Adams, Shubha Chandrasekharan, Amrita Mishra, and Songyan Liu 11Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons Laura G. Pedraza-Fariña 12The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention Glenn Saxe and Mary Acri 13Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project Pedro Oliveira, Leid Zejnilović, and Helena Canhão 14Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons Stephen Flowers 15The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons Katherine J. Strandburg and Brett M. Frischmann 16The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons Katherine J. Strandburg and Stefan Bechtold Governing Knowledge Commons: An Appraisal Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
Summary: Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.
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Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.

Knowledge Commons and the Road to Medical Commons

Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison

1The Knowledge Commons Framework

Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison

2Leviathan in the Commons: Biomedical Data and the State

Jorge L. Contreras

3Centralization, Fragmentation, and Replication in the Genomic Data Commons

Peter Lee

4Genomic Data Commons

Barbara J. Evans

5Population Biobanks’ Governance: A Case Study of Knowledge Commons

Andrea Boggio

6The Sentinel Initiative as a Knowledge Commons

Ryan Abbott

7Cancer: From a Kingdom to a Commons

Michael Mattioli

8The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons

Maja Larson and Margaret Chon

9Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology

Andrew W. Torrance

10Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community

Tania Bubela, Rhiannon Adams, Shubha Chandrasekharan, Amrita Mishra, and Songyan Liu

11Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons

Laura G. Pedraza-Fariña

12The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention

Glenn Saxe and Mary Acri

13Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project

Pedro Oliveira, Leid Zejnilović, and Helena Canhão

14Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons

Stephen Flowers

15The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons

Katherine J. Strandburg and Brett M. Frischmann

16The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons

Katherine J. Strandburg and Stefan Bechtold

Governing Knowledge Commons: An Appraisal

Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison

Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.