Governing Medical Knowledge Commons /
Governing Medical Knowledge Commons /
edited by Katherine J. Strandburg, Brett M. Frischmann, Michael J. Madison.
- 1 online resource digital, PDF file(s).
- Cambridge studies on governing knowledge commons Cambridge companions online .
- Cambridge studies on governing knowledge commons. Cambridge companions online. .
Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.
Knowledge Commons and the Road to Medical Commons
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
1The Knowledge Commons Framework
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
2Leviathan in the Commons: Biomedical Data and the State
Jorge L. Contreras
3Centralization, Fragmentation, and Replication in the Genomic Data Commons
Peter Lee
4Genomic Data Commons
Barbara J. Evans
5Population Biobanks’ Governance: A Case Study of Knowledge Commons
Andrea Boggio
6The Sentinel Initiative as a Knowledge Commons
Ryan Abbott
7Cancer: From a Kingdom to a Commons
Michael Mattioli
8The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons
Maja Larson and Margaret Chon
9Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology
Andrew W. Torrance
10Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community
Tania Bubela, Rhiannon Adams, Shubha Chandrasekharan, Amrita Mishra, and Songyan Liu
11Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons
Laura G. Pedraza-Fariña
12The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention
Glenn Saxe and Mary Acri
13Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project
Pedro Oliveira, Leid Zejnilović, and Helena Canhão
14Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons
Stephen Flowers
15The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons
Katherine J. Strandburg and Brett M. Frischmann
16The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons
Katherine J. Strandburg and Stefan Bechtold
Governing Knowledge Commons: An Appraisal
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.
9781316544587 (ebook)
Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.
Knowledge Commons and the Road to Medical Commons
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
1The Knowledge Commons Framework
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
2Leviathan in the Commons: Biomedical Data and the State
Jorge L. Contreras
3Centralization, Fragmentation, and Replication in the Genomic Data Commons
Peter Lee
4Genomic Data Commons
Barbara J. Evans
5Population Biobanks’ Governance: A Case Study of Knowledge Commons
Andrea Boggio
6The Sentinel Initiative as a Knowledge Commons
Ryan Abbott
7Cancer: From a Kingdom to a Commons
Michael Mattioli
8The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons
Maja Larson and Margaret Chon
9Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology
Andrew W. Torrance
10Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community
Tania Bubela, Rhiannon Adams, Shubha Chandrasekharan, Amrita Mishra, and Songyan Liu
11Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons
Laura G. Pedraza-Fariña
12The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention
Glenn Saxe and Mary Acri
13Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project
Pedro Oliveira, Leid Zejnilović, and Helena Canhão
14Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons
Stephen Flowers
15The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons
Katherine J. Strandburg and Brett M. Frischmann
16The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons
Katherine J. Strandburg and Stefan Bechtold
Governing Knowledge Commons: An Appraisal
Katherine J. Strandburg, Brett M. Frischmann, and Michael J. Madison
Governing Medical Knowledge Commons makes three claims: first, evidence matters to innovation policymaking; second, evidence shows that self-governing knowledge commons support effective innovation without prioritizing traditional intellectual property rights; and third, knowledge commons can succeed in the critical fields of medicine and health. The editors' knowledge commons framework adapts Elinor Ostrom's groundbreaking research on natural resource commons to the distinctive attributes of knowledge and information, providing a systematic means for accumulating evidence about how knowledge commons succeed. The editors' previous volume, Governing Knowledge Commons, demonstrated the framework's power through case studies in a diverse range of areas. Governing Medical Knowledge Commons provides fifteen new case studies of knowledge commons in which researchers, medical professionals, and patients generate, improve, and share innovations, offering readers a practical introduction to the knowledge commons framework and a synthesis of conclusions and lessons. The book is also available as Open Access.
9781316544587 (ebook)